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  1. Maria Jaime says:

    Sorry to hear about your health, and thank you for sharing it publicly with the purpose of raising awareness. I had never heard of that disease, I hope that this helps anyone else going through this. I totally understand the frustration of not having a diagnosis, I’m going through the same thing. I’ve been told I “could” have this or that, and I had to do my own research just to get better answers. I’ve had to tell the Doctor’s what to test me for because I think they’re just guessing at this point. I also joined a FB support group and it has really helped me. Being able to connect with others who share the same health issues is very alleviating knowing you’re not alone.

    I’m glad that you finally got some answers, a proper diagnosis, and treatment. I hope you heal sooner than later and hopefully get to live the closest to a normal life as possible. . Prayers for a healthy YOU! xoxo -Chiquis

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